Columnist Connie Chandler shares how a caregiver-patient relationship evolved into a friendship, where both women provide ...

Columnist Brianna Albers tends to make mountains out of molehills, a sure sign that living with SMA has resulted in illness anxiety.

In an interview-based study, adults with SMA reported a lack of coordination during their transition from pediatric care once ...

For people with spinal muscular atrophy, physical therapy can help support mobility, strength, and quality of life, regardless of SMA type.

Columnist Helen Baldwin worried the baby who arrived May 18, 1997, would keep everyone awake, but his silence signaled a ...

Columnist Connie Chandler writes of a generational disconnect with new SMA patients, but says living fully must remain their ...

SMA Europe has launched an online tool designed to help patients, doctors, and others in the spinal muscular atrophy (SMA) ...

The exergame Tales from the Magic Keep aims to boost physical activity, and proved to be a feasible tool for children with ...

If you have spinal muscular atrophy (SMA), air travel often requires extra planning. From navigating crowded airports to ensuring your equipment is handled with care, the process can be stressful.

Last week, I ran 4 miles in 50 minutes. “Big deal,” you might say. “You ride in a power wheelchair that can go 6 miles per hour.” All very true. Because I have SMA and cannot walk or bear weight, I ...

For much of the time, the reality for those of us living with a chronic condition like SMA entails having something dangled in front of our faces, just out of reach — which isn’t challenging to do, ...

In 1991, before my family had ever heard the words “spinal muscular atrophy” (SMA), my parents desperately sought out answers to my developmental delays. At just 3 months old, I began showing signs of ...