Living with EB
Living with EB
Nov 12, 2019
eb-researchnetwork.org
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Kids with EB (Epidermolysis Bullosa) are called Butterfly 🦋 Children. This video captured an unbelievable experience we all had yesterday. This butterfly flew up and landed right outside the window directly behind us simultaneously as Sadie and Kendall walked into the family waiting area right before Jackson’s feeding tube surgery was to begin. We stood in a circle and had family prayer before returning to our seats where the butterfly 🦋 remained. Was crying as I grabbed the camera to record.
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