Part 3 and final part of our our GI doctors helps get C-Money diagnosed with Sanfilippo syndrome. unfortunately Sanfilippo syndrome is a rare, genetic disease. Both parents have to be carriers in order for a child to get it. Both my husband and I had no idea that we were carriers until Carter was diagnosed and we had never even heard of this disease. The best way to describe it is as a childhood version of Alzheimer’s. It takes literally everything from these children. They will develop typicall

Part 2 of how we came across C-Money’s fist genetic diagnosis #storytime #carterschallenge #medicallycomplex #parenting #momlife #caveman #cavebaby #ditl #chronicpancreatitis | Carter's Challenge

camila on Instagram: "this is a timelapse of Carter (@carterschallenge)! ❤️💙 - Carter has a rare, progressive, and fatal disease called Sanfilippo Syndrome. this affects 1 in 70,000 children and it’s a genetic condition that causes severe damage to the body and mostly the brain. this disease is often compared to Alzheimer’s, but for children. i created this portrait and this post to help spread awareness for this disease. i also donated $100 using some of the money i made from commissions to th